Francine Camacho sat in her wheelchair, raising an insulin pen in each hand.
“These two insulins would cost me $500,” said Camacho, “Now, this one alone cost $500 and this one is $295.”
Camacho said she pays $800 for a refill roughly every three months, a price she described as horrifying.
“I just don’t know what to do,” she said.
Camacho is one of 105,000 Finger Lakes residents with type 1 or type 2 diabetes who can look forward to lower insulin prices if Congress passes pending legislation.
TheAffordable Insulin Now Act will improve access to insulin and guarantee families will not have to ration this product because of high cost.
“The bill would ensure, once and for all, that families never have to make the choice of food on the table or insulin in your bloodstream,” said U.S. Senate Majority Leader Chuck Schumer, who will call for a Senate vote in March.
The New York Democrat talked about the pending legislation on Monday in Rochester during a news conference at Lifespan.
Once passed, the bill will place a $35 cap out-of-pocket cost on insulin per month. For people without insurance, insulin can normally cost $300-$600 a month.
The price has been increasing by 15-17% per year since 2012, according to Schumer.
“When it comes to insulin, and controlling diabetes, if we aren’t able to have cost effective medication therapy that patients can access, it can have both short- and long-term unintended consequences,” said Erica Dobson, a pharmacist for University of Rochester Medical Center who works directly with diabetic patients.
She said that patients often complain to her about the high out-of-pocket cost of their medicine. Dobson added that reducing those direct costs to patients will help them have access to therapies that are required.
“This will improve their health and their safety,” Dobson said.
Greg Best has been living with type 1 diabetes for 20 years and has had to walk away from his medicine while at the pharmacy because of pricing.
“Imagine getting to the checkout and they say, ‘This was $50, but now it's going to be $500,’” he said.
Schumer said the Affordable Insulin Now Act is being met with bipartisan support and he anticipates it will pass within the next several months.
“No family should have to go bankrupt just because they need insulin to survive,” he said.